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Sunday, May 1, 2011
News
hey everyone, unfortunately I'm taking a break from my blog for a while, because it is just too hard to keep posting when there is so much going on: school, spelling, housework because my dad is working and my mom is at Daniel's appointments and errands and such, helping with Daniel, etc. Speaking of which, I have some very bad news. For starters, he is still having seizures, which means he is severely developmentally delayed- he can't even sit up on his own and he's a year and a half old. He also needs supplied oxygen at night because he is not getting enough on his own Said oxygen is pumped from a big tank in the hallway into his nose through a tube strapped to his face. Second, he had a "swallow study" which showed that regular baby food he could eat just fine, but formula and liquids were getting into his lungs. So he now has a tube running from his nose down into his stomach, which is hooked up to an IV pole in the family room. he was fed from a bag which the liquid was poured into, and the liquid was pumped through another tube which connected to his nose rube which then brought the food to his stomach. However, every time he gets fed through the feeding tube, he starts to cough violently and puke up all of his food. He starts to cry and the tube comes out of his nose. The puke just gets everywhere, and it smells bad, and you can't help but feel sorry for the poor little guy. We think it's because he has stomach flu, and he may also have a cold because he sneezes very often. So PLEASE PRAY AS HARD AS YOU POSSIBLY CAN AND DO WHATEVER YOU CAN TO ASK GOD TO HELP DANIEL AND MY MOM BECAUSE SHE IS STARTING TO BELIEVE THAT HE WON'T BE HEALED UNLESS THERE IS A MIRACLE. Oh and did I mention that he can't start another (86% effective seizure medicine unless he clears a mental and physical health test (basically-it's actually an EEG) on Monday? (today) I wish I could have posted this earlier so you could have prayed extra hard on Divine Mercy Sunday but anyway thank you for praying and I didn't mean to get you down (if I did) and I just wanted to tell you not to look for any posts soon. ttyl, gina.s
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