Hey, I still can't post regularly, but whenever something big worth mentioning happens, you know I will mention it. So, I'm just going to say it. Daniel's nose-feeding (NG-nasogastric) tube is gone and has been replaced with a more confusing and frustrating, but better in the long run, G (gastric) tube. As you can imagine, the "naso" has been removed, because the tube used to run from his nose to his stomach, but now, it just goes right into his stomach. So he's had surgery. There is now an opening in his stomach where the "tube" is.
Here is a drawing of what the thing looks like (the balloon part is inside, to keep it from being pulled out.) http://goo.gl/izud4
This is what it looks like on Daniel (the tan surrounding is skin, but that is a model, so it's probably rubber.)
http://goo.gl/Wkyj2
Thanks for all your prayers, last night Daniel giggled and smiled for about 30 seconds, we hadn't seen that in months. Hopefully, with all the new medicines we're trying, at least one will help him!!
TTYL <3
gina.s
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